32 to go

I had my first proton therapy treatment for my salivary gland cancer today. Being an alum of proton therapy, I thought I had this down. However, I realized it’s the other end of my body that’s being zapped so things are going to be different.

After I lie on the table in the radiation gantry, the therapist inserts my bite block in my mouth. That keeps my mouth in an open position and insures that my mouth does not move while depressing my tongue. Sound unnatural? Yes indeed!

I have a custom-made Spiderman mask that they snap down to the table to keep my head from moving. I’ve always thought the Spiderman character must feel very claustrophobic and uncomfortable in his get-up. Now I understand. My cheekbones are still aching from the pressure that the mask put on my face to hold my head in place. The whole process took less than 40 minutes.

Putting this all into perspective, my whining about this being uncomfortable and causing me minor pain has to be balanced with the fact that, hey, they are blasting me with radiation to get rid of my cancer.

I am grateful to the Lord for the provision of this technology as well as all of the staff who are attending to me and for their many years of training and expertise in dealing with whiny people like me.

What is Ton Tenga?

A few people have asked, “What is Ton Tenga?”

As a part of our family’s overseas service, we lived in Upper Volta (Burkina Faso since August 1984) for 7½ years. In addition to speaking French we had to speak the language of the Mossi people called Moré. In that language “ton tenga” means “our land” or more loosely “our farm.” 

When we purchased land in northwest Georgia in 2006, we named it Ton Tenga. We built our new house on this land and for the past 12 years, Ton Tenga has been our home.

Restart

I started this blog in 2007 when we were building our house because we wanted to share the building process with our kids and their families. At that time three of our four children were living overseas. The most activity on this blog was during my proton therapy treatment for prostate cancer at the University of Florida hospital in Jacksonville during 2012. 

Once again I am dealing with cancer, and the Lord has led me to do a restart with this blog to keep family and friends posted on what’s going on with the cancer treatment. 

A nodule developed under my left mandible last summer. I went to urgent care for an ear infection in June and pointed the nodule out to the PA, and she said that was due to the ear infection.

The nodule became bigger, but I did not worry about it. My dad fell the first week of August and resulting injuries and complications confined him to the hospital and nursing home until he passed away on September 8. I was in Mississippi for a great deal of the month of August, and once while sitting with my brother I mentioned the nodule, and he said, “Look, I have had one under my ear for the past 15 years.” He went on to say that his doctor told him long ago not to worry about it, so I just decided not to worry about the knot in my neck.

During my annual physical in October I told my doctor about it and after a quick exam, he said that he was sending me to get a head scan right after my visit with him. That was when things started moving fast—needle biopsy on the salivary gland showed poorly differentiated carcinoma; CT scan of chest showed no metastasizing in the chest; surgery on November 15 to remove the left submandibular salivary gland and tumor; pathology report revealed mucoepidermoid carcinoma; another needle biopsy on right thyroid because a scan showed a spot on the gland; neck dissection surgery on December 6 to remove 19 lymph nodes and then post-surgery problems with a buildup of serum in the neck above the incision resulting in reopening of the incision two times to drain serum.

I will begin 6-7 weeks of proton therapy treatment at Emory Proton Center in midtown Atlanta on Thursday. Treatments will be every day Monday – Friday. Those who have tackled Atlanta traffic know those experiences can produce a lot of emotional stress, and at my age I want to avoid as much emotional stress as possible. Therefore, I will be staying overnight for much of my time in Atlanta so that I can be more productive with my work.

Many of you will remember that I had proton therapy treatment in Florida for my prostate cancer in 2012, and I was very pleased with that treatment and the minimal side effects. At that time there were only nine proton treatment centers in the USA, but now there are many more and Emory’s center opened a year ago. I am very pleased with my radiation oncologist at Emory. He is the head and neck professor at Emory. He gave me his mobile phone number and email address in our first consultation with him. How many doctors do that!? And, he answers texts within a few minutes of receiving them!

Cheryl and I have received a wealth of prayers and encouraging support from family and friends from all over the world. So many are continuing to ask for updates on my treatment, so I have decided to restart this blog and post periodic reports and stories during my 6-7 weeks of treatment. 

Thank you for your encouragement and prayer support during these days. I would be grateful to learn of prayer requests that you have, so Cheryl and I can intercede with you and for you. 

On the day before I learned that I had this cancer, I sent this verse to a friend who was having a difficult health challenge and the Lord has affirmed that I should claim Joshua 1:9 during this season: “Have I not commanded you? Be strong and of good courage; do not be afraid nor be dismayed, for the Lord your God is with you wherever you go.”

Fifty One

I followed dozens of my classmates from high school to Mississippi State University where I quickly stopped walking with the Lord. Three months into that first semester the Lord really got my attention and made me realize that I did not have any real friends—only “party friends.” 

During that time I begin to pray and the Lord led me to transfer in the middle of my freshman year to Mississippi College. There I met Cheryl Keathley from Memphis, Tennessee. I joined a performing choir because they desperately needed tenors. Up until that time I could barely read music—much less know that I was a tenor! In choir rehearsals I could watch that beautiful young lady with strawberry blonde hair playing the piano from where I was seated as I looked at the conductor. She captured my attention, and we began to spend time together. 

We were attracted to each other because even though we were so different from each other in the way we grew up and some of the things that we liked to do, but after a few weeks we were in love and those differences faded. I had dated several girls in high school and in college before I met Cheryl, but not one of them won my heart like Cheryl did.

We met each other’s families during that first semester of dating. She planned to go to summer school that first summer after we met, and I wanted to be near her so badly, that I planned on going to summer school, also. During that time I was working at Borden’s Dairy on the cleanup crew in the ice cream factory, so I did not get back to the dorm until 11-12 pm each night. The dorm doors were closed at 11 pm during the week, but I could count on Cheryl looking our her dorm window watching for me to arrive at my dorm down the hill from her dorm. I would blink my bright lights up the hill to wish her a good night and to remind her that I loved her. 

That was 53 years ago, and she still makes me blink my lights. Today is our 51^st wedding anniversary. It is difficult to imagine, but I love Cheryl so much more than I did 51 years ago. She has been the rudder that has guided our marriage to be a strong one. She has been the steady deliberate one who has kept me straight and sane during these years of living in seven different countries on three continents. If I have been successful in anything it is because she has been my hardest critic and my biggest cheerleader. 

My dear Cheryl, you bring out the very best in me and you are the perfect life soul mate for me. I am thankful to the Lord for giving me every moment of my life, and I am thankful to the Lord for giving you to me for you make every moment priceless. With all my love…